{"id":5346,"date":"2026-04-24T18:37:03","date_gmt":"2026-04-24T18:37:03","guid":{"rendered":"https:\/\/ventil.rs\/blog\/health\/regeneron-weighs-overseas-price-for-otarmeni-gene-therapy-for-rare-type-of-hearing-loss\/"},"modified":"2026-04-24T18:37:03","modified_gmt":"2026-04-24T18:37:03","slug":"regeneron-weighs-overseas-price-for-otarmeni-gene-therapy-for-rare-type-of-hearing-loss","status":"publish","type":"post","link":"https:\/\/ventil.rs\/blog\/health\/regeneron-weighs-overseas-price-for-otarmeni-gene-therapy-for-rare-type-of-hearing-loss\/","title":{"rendered":"Regeneron weighs overseas price for Otarmeni, gene therapy for rare type of hearing loss"},"content":{"rendered":"<p> <br \/>\n<\/p>\n<div id=\"SpecialReportArticle-ArticleBody-6\" data-module=\"ArticleBody\" data-test=\"articleBody-2\" data-analytics=\"SpecialReportArticle-articleBody-6-2\"><span class=\"HighlightShare-hidden\" style=\"top:0;left:0\"\/><\/p>\n<div role=\"region\" aria-labelledby=\"Placeholder-ArticleBody-Video-108296806\">\n<div role=\"button\" tabindex=\"0\" id=\"Placeholder-ArticleBody-Video-108296806\" class=\"PlaceHolder-wrapper\" data-vilynx-id=\"7000410820\" data-test=\"VideoPlaceHolder\">\n<div class=\"InlineVideo-videoEmbed\" id=\"InlineVideo-0\" data-test=\"InlineVideo\">\n<div class=\"InlineVideo-wrapper\">\n<div class=\"InlineVideo-inlineThumbnailContainer\"><span class=\"InlineVideo-videoButton\"\/><span\/><\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<div class=\"group\">\n<p><span class=\"QuoteInBody-quoteNameContainer\" data-test=\"QuoteInBody\" id=\"SpecialReportArticle-QuoteInBody-1\"><a href=\"https:\/\/www.cnbc.com\/quotes\/REGN\/\">Regeneron Pharmaceuticals<\/a><span class=\"QuoteInBody-inlineButton\"><span class=\"AddToWatchlistButton-watchlistContainer\" id=\"-WatchlistDropdown\" data-analytics-id=\"-WatchlistDropdown\"><button class=\"AddToWatchlistButton-watchlistButton\" aria-label=\"Add To Watchlist\" data-testid=\"dropdown-btn\"><span class=\"AddToWatchlistButton-addWatchListFromTag\"\/><\/button><\/span><\/span><\/span> will make its newly approved gene therapy for a rare, genetic form of hearing loss available for free in the U.S. The company hasn&#8217;t yet decided how much it will charge in other countries, Regeneron CEO Leonard Schleifer told CNBC on Friday.<\/p>\n<p>&#8220;We haven&#8217;t set a price yet, but they should pay their fair share outside the United States,&#8221; Schleifer said in an interview with CNBC&#8217;s <a href=\"https:\/\/www.cnbc.com\/becky-quick\/\">Becky Quick<\/a>. &#8220;In the United States, we&#8217;re giving it away for free.&#8221;<\/p>\n<p>Regeneron on Thursday announced it would make the therapy available for free in the U.S. alongside a <a href=\"https:\/\/www.cnbc.com\/2026\/04\/23\/regeneron-inks-drug-pricing-deal-with-trump-will-offer-hearing-loss-therapy-for-free.html\">larger deal<\/a> with the Trump administration around drug pricing. President <a href=\"https:\/\/www.cnbc.com\/donald-trump\/\">Donald Trump<\/a>, for years, has argued that Americans are unfairly paying more for drugs than other wealthy nations and, as a result, is subsidizing innovation.<\/p>\n<p>Regeneron&#8217;s gene therapy Otarmeni treats a rare disease where a faulty OTOF gene limits production of a protein that transmits sound signals in the ear. Otarmeni delivers a working copy of the gene. In a clinical trial, 16 of 20, or 80%, of people who received the gene therapy experienced improvements to their hearing.<\/p>\n<p>About 50 babies a year are estimated to be born with the condition in the U.S. Because it&#8217;s so rare, the gene therapy wasn&#8217;t expected to be a financial boon for Regeneron. Piper Sandler analysts estimated peak sales of $130 million.<\/p>\n<p>Schleifer said Regeneron decided to make the treatment available for free in the U.S., &#8220;to show who we are.&#8221; <\/p>\n<p>The treatment was approved under the Food and Drug Administration&#8217;s newly created National Priority Voucher program, which aims to accelerate reviews of drugs that align with U.S. national health priorities. <\/p>\n<p>Gene therapies can cost millions of dollars, and European countries have balked at the price tags in the past. <\/p>\n<\/div>\n<div class=\"ArticleBody-googlePreferredSourceContainer\" data-module=\"GooglePreferredSource\" data-id=\"SpecialReportArticle-GooglePreferredSource-6\"><a href=\"https:\/\/www.google.com\/preferences\/source?q=https:\/\/www.cnbc.com\/\" target=\"_blank\" rel=\"noopener noreferrer\">Choose CNBC as your preferred source on Google and never miss a moment from the most trusted name in business news.<\/a><\/div>\n<\/div>\n<p><br \/>\n<br \/><a href=\"https:\/\/www.cnbc.com\/2026\/04\/24\/regeneron-otarmeni-gene-therapy-hearing-loss.html\">Source link <\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Regeneron Pharmaceuticals will make its newly approved gene therapy for a rare, genetic form of hearing loss available for free in the U.S. The company hasn&#8217;t yet decided how much it will charge in other countries, Regeneron CEO Leonard Schleifer told CNBC on Friday. &#8220;We haven&#8217;t set a price yet, but they should pay their&#8230;<\/p>\n<p class=\"more-link-wrap\"><a href=\"https:\/\/ventil.rs\/blog\/health\/regeneron-weighs-overseas-price-for-otarmeni-gene-therapy-for-rare-type-of-hearing-loss\/\" class=\"more-link\">Read More<span class=\"screen-reader-text\"> &ldquo;Regeneron weighs overseas price for Otarmeni, gene therapy for rare type of hearing loss&rdquo;<\/span> &raquo;<\/a><\/p>\n","protected":false},"author":1,"featured_media":5347,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"fifu_image_url":"https:\/\/image.cnbcfm.com\/api\/v1\/image\/107399561-17127823822020-11-23t221008z_1495473757_rc2a9k95q6to_rtrmadp_0_health-coronavirus-regeneron.jpeg?v=1712782465&w=1920&h=1080","fifu_image_alt":"","footnotes":""},"categories":[4],"tags":[73,74,808,77,2615,1110,70,4203,4204,156,71,3018,426],"class_list":["post-5346","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-health","tag-biotech-and-pharmaceuticals","tag-biotechnology","tag-breaking-news-politics","tag-business-news","tag-donald-j-trump","tag-donald-trump","tag-health-care-industry","tag-hearing-loss-and-deafness","tag-leonard-schleifer","tag-pharmaceuticals","tag-politics","tag-regeneron-pharmaceuticals-inc","tag-united-states"],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v17.8 (Yoast SEO v22.1) - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Regeneron weighs overseas price for Otarmeni, gene therapy for rare type of hearing loss - Breaking News<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/ventil.rs\/blog\/health\/regeneron-weighs-overseas-price-for-otarmeni-gene-therapy-for-rare-type-of-hearing-loss\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Regeneron weighs overseas price for Otarmeni, gene therapy for rare type of hearing loss\" \/>\n<meta property=\"og:description\" content=\"Regeneron Pharmaceuticals will make its newly approved gene therapy for a rare, genetic form of hearing loss available for free in the U.S. The company hasn&#8217;t yet decided how much it will charge in other countries, Regeneron CEO Leonard Schleifer told CNBC on Friday. &#8220;We haven&#8217;t set a price yet, but they should pay their...Read More &ldquo;Regeneron weighs overseas price for Otarmeni, gene therapy for rare type of hearing loss&rdquo; 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